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這是我由一個平凡的幸福女人,成為一個無法治癒的軟骨肉瘤患者,經過17+4次開刀後,如醫生一開始所預期...

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這是我由一個平凡的幸福女人,成為一個無法治癒的軟骨肉瘤患者,經過17+4次開刀後,如醫生一開始所預期,最終坐上輪椅的身障人士的經歷、故事以及一路上的起起伏伏的紀錄平台。

我也分享,在下半身癱瘓前,如中樂透般幸運的懷孕,生下天使兒子,Andrew—我這輩子所經歷最美妙與最痛苦的旅程。

一路上遇到許多貴人與好心人的幫忙,有時只是一個微笑,一個舉手之勞,都讓我暖在心頭。

這個部落格,無法100%的正面,但絕對誠實呈現;不怨天尤人或要求特權,但這社會對「身障」的不正視與敷衍行事,一一點名列出。

在此請勿傳教、請勿教我如何忌口、告訴我哪兒有神蹟;這兒是我每天實實際際,血淋淋的生活紀錄。

This is my blog about how an ordinary girl who seemed to have it all, beaten up bad by Chondrosarcoma.
Yes, the tumor was that stubborn; I had faith, I had the best surgeons who never gave up on me for 17+4 times, but I still ended up inevitably paralyzed from T5-9, in a wheelchair, like they first predicted.

I have been helped by strangers, even a nod, a smile, make me feel blessed and grateful.

I am here to share my path through it all. It’s not going to be pretty or all optimistic, but the stories will be as bloody genuine as they are; I am not going to sob or ask for pity, but I am going to tell the world, how the society brush us off with fake sympathies and do just enough to pass absurd and ruthless laws.

Please don’t preach, don’t tell me how to diet, don’t tell me there’ll be miracles. This is a record of my taunting daily life.


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2000年相遇,2001年罹患「胸椎惡性軟骨肉瘤」,2013年生下Andrew,2015癱瘓坐輪椅,2020年動了第19次手術,於2020/9/23因肺轉移辭世。沒有生命的最後一面,只有人生的最好一面。
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